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Prayers Needed for my Grandson

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  • jazzieal
    started a topic Prayers Needed for my Grandson

    Prayers Needed for my Grandson

    To My SBM Family
    I know this is a long post but please bear with me...
    I am having big time problems in my family right now and I need to ask for your prayers..
    I am posting links to 2 pages I did for my Grandson Andrew in October..some of you know his story already but for those who dont...if you look at these it will show you his background..
    Page 1: http://www.scrapbookmax.com/gallery/...00&ppuser=2747
    Page2: http://www.scrapbookmax.com/gallery/...00&ppuser=2747

    Andrew has had private duty nurses since his accident..at present we have them 20 hrs a day..from 5 PM to 9 PM the family takes care of him..Andrew can do nothing for himself..I hate the word "Vegetable" that is used to describe those in his condition...but that is how he is.He will be 15 yrs old on March 27th..he has developed scholosis due to his accident..his body is almost in an "S" shape now..all of his organs are being shifted ..as his body continues to do this his lungs will eventally collaspe...as this happens he will need more nursing care..he stopped breathing about 2 weeks ago and we had to call 911.. thank God before they got here his nurse had already got him breathing again..it was only a short time thing..He has almost constant seizures and always some type of respiratory problem..
    Alabama Medicaid pays for Andrews nursing care and all of his medical needs..however one of their guidelines for the care and number of hrs he can get..are based on the ability of his caregiver..(Me as I have custody of him at the present time) to take care of him the hrs we dont have nurses...Medicaid says that since my health has gotten worse I am not able to take care of him and therfore dont meet the guidelines .. they want to stop his nurses..they say we can put him in a nursing home but I will NEVER allow that..he would die in a week because they are not equipped to take care of a patient that needs the CONSTANT care that Andrew requires..we have appealed their decision and are now waiting on a hearing..we have Childrens Advocacy attorneys and are fighting with all the resources we have..they also say we have to have a legal paper signed and in his chart which says
    if he stops breathing again...the nurses are to do everything to bring him back..or they just make him as comfortable as possible and let him go...I am pulled is no many directions about this decision I cant find the courage to make it..
    Please pray that medicaid wont take his hours away and that we can make the right decision for Andrew..the one that is best for him and not for us..We have all just witnessed the power of prayer with our Mary Ann...I know God is our Best Resource..Thank you all so much..Love to all jazzieal...Linda

  • eye
    replied
    Yes Jazz is a very special person who has touched so many right where it is suppose to in the heart. She is well loved.Never complaining.Always thinking and helping others.

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  • wolvsie35
    replied
    All I can say is I need to go out and buy another box of tissues...UGH....This is a very special thread, and wasn't here when this whole thing started..I never knew Jazz had such complications in her life...and for so long...My heart goes out to her and Andrew..Eye, Doll, Jazz, Crops, Terry, and others, all had me in tears...It amazes me on how close we all have become in such a short time...and most of us has never met...I am a true believer that things happen for a reason...We might not know it now, but someday, we will...
    Loved all the Layouts and photos shared too...Everyone is so special and hope things can turn around for Jazz...She deserves so much...We love ya...

    Leave a comment:


  • pkdoll
    replied
    OMG!! Thank you Onie!! I am at work right now and I was going to hunt this down when I got home. You are such a sweetheart!! Now I don't have to! Thank you thank you! Here is a lot of info you girls can use for your letters and yes I will also print this off.

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  • OnieRN
    replied
    Regarding Extreme Makeover !

    I wanted to bring this thread to the top!!!!

    Thank You PK for finding this! Your right, it has some excellent information in it. Also check out both links in the first posting. This is so precious..... I honestly think we should print out these 2 pages and submit with the Application!!!! This really tells a lot of the story!

    Leave a comment:


  • jazzieal
    replied
    Originally posted by nanwu View Post
    Great news Jazz, and I bet Andrew is going to love the icy poles (sorry Aussie word for popsicles), don't you go pinching all the best flavours first though okay teenagers get real upset about these things
    Thanks everyone for all the comments..it really brightens my day to read them all..ya'll are sooo sooo special..
    Nan..love the name icy poles..never heard that but thats what they are..LOL..I love hearing things like that about other countries
    hugs and love to you all

    Leave a comment:


  • nanwu
    replied
    Great news Jazz, and I bet Andrew is going to love the icy poles (sorry Aussie word for popsicles), don't you go pinching all the best flavours first though okay teenagers get real upset about these things

    Leave a comment:


  • mswizard
    replied
    Originally posted by *eng* View Post
    Hey Wizz, lovely to see you
    Thanks eng...good to be back even if it is only a minute or so at a time lol. I have new pics of Emmy to post just as soon as I get them off my camera.

    Leave a comment:


  • pkdoll
    replied
    Jazz-it fills my heart with joy when you come on to report good news about Andrew. He is sooo lucky to have you as his grandma!!

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  • spanielmom
    replied
    This is wonderful Jazz. I put you and Andrew on our prayer list at church each week and will continue to do so. Now go buy those popsicles. After all---teenagers don't like to wait.

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  • KristyAnn
    replied
    Am praying for you and let God decide, he knows what is best for all of you.

    Leave a comment:


  • *eng*
    replied
    Hey Wizz, lovely to see you

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  • *eng*
    replied
    Fantastic news Jazz, it's wonderful when things happen like that. I do hope it continues

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  • mswizard
    replied
    Awwww Jazz, that is AWESOME news! I am so excited for you and glad you had a good week and Andrew too! Keep us posted (as I know you will) Andrew is such a lucky young man to have a gramma such as you! I wish you all the best!
    Hugs, Kisses and Well wishes!
    ~Liz~

    Leave a comment:


  • crops2dawn
    replied
    Ohhh Jazz, what great news another wonderful week!!! This is just proof that prayers DO work! I will continue praying for him and for your family!!!!

    Leave a comment:

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